So what is like to live with illness where there is no visible sign of it. For me, very difficult. I have ME/CFS with Fibromyalgia. And to complicate matters depression with anxiety.
I became ill back in 2004 when I had to leave a job because of being mentally abused by my manager. It was bad enough that my body gave in and caused me to have a virus which lasted 6 weeks. Once it was over I was so weak that I couldn’t even make my own meals. I ended up having my mum come round and look after me. She would make 3 meals a day for me and do my housework when needed. It took a about a year before I was diagnosed with ME, after everything else was crossed off the list. Lots of tests.
I have managed over the years to cope with the illness but still can’t work due to the tiredness and now the anxiety. From the outside I look perfectly normal and I act normal as well. But inside it is an effort each day to just try to live a normal life. I know there is no such thing as a normal life but one where I feel normal. Which to me means keeping on top of the housework and being able to go out and get some food.
It gets very frustrating when some mornings I can’t even get up or if I do I am back asleep again within an hour. I have to sleep in the afternoons to make sure I can make it through the day. If I don’t sleep it takes me about 2 days to a week to recover. I only go out about 3 times a year, possibly would go out more if I had the money but it takes a lot out of me. There have been many times when I have had to cancel going out because I am just not fit enough to do it.
I will write more about living on my own as well.